Published 29 April 2019 En fallstudie av några forskningsorienterade institutioner Läs mer här

https://www.lupop.lu.se/article/externfinansieringens-roll-i-svensk-hogskoleforskning - 2025-02-08

Published 30 April 2019 In Sweden, the results of the TASTE trial were impactful in daily clinical practice and led to a relevant decrease in TA use in ST-segment-elevation myocardial infarction patients undergoing percutaneous revascularization. New publication in Circulation Cardiovascular interventions.Read more here.

https://www.lupop.lu.se/article/assessing-nationwide-impact-registry-based-randomized-clinical-trial-cardiovascular-practice - 2025-02-08

Published 2 May 2019 The revised GEP are addressed to everyone involved in the planning, preparation, execution, analysis, and evaluation of epidemiological research, as well as research institutes and funding bodies. New publication in European Journal of EpidemiologyRead more here

https://www.lupop.lu.se/article/guidelines-and-recommendations-ensuring-good-epidemiological-practice-gep-guideline-developed-german - 2025-02-08

Published 2 May 2019 Nätverks-nytt nr 2, april 2019 Läs mer här

https://www.lupop.lu.se/article/nyhetsbrev-snd-natverket - 2025-02-08

Published 3 May 2019 Acromegaly is a rare disease, associated with multiple organs and systems damage. Thanks to implementation of registries, systematic data gathering, knowledge sharing and standardizing medical practices for optimal care greatly improved. New publication in Best practice & Research. Clinial Endocrinology & MetabolismRead more here

https://www.lupop.lu.se/article/national-acromegaly-registries - 2025-02-08

Published 6 May 2019 Data repositories have the potential to play an important role in the effective and safe sharing of individual-participant data (IPD) from clinical studies. We analysed the current landscape of data repositories to create a detailed description of available repositories and assess their suitability for hosting data from clinical studies, from the perspective of the clinical re

https://www.lupop.lu.se/article/evaluation-repositories-sharing-individual-participant-data-clinical-studies - 2025-02-08

Published 23 November 2017 Abolishment of the confidentiality agreement for data requests is expected to speed up the delivery process of data from SoS. According to a post on linkedin.com, the Swedish National Board of Health and Welfare (Socialstyrelsen, SoS) has abolished the confidentiality agreement for data requests.

https://www.lupop.lu.se/article/faster-delivery-sos-data - 2025-02-08

Published 7 May 2019 Recent prostate cancer screening trials have given conflicting results and it is unclear how to reduce prostate cancer mortality while minimising overdiagnosis and overtreatment. Prostate cancer testing is a partially observable process, and planning for testing requires either extrapolation from randomised controlled trials or, more flexibly, modelling of the cancer natural h

https://www.lupop.lu.se/article/natural-history-model-planning-prostate-cancer-testing-calibration-and-validation-using-swedish - 2025-02-08

Published 7 May 2019 The presentations from the DMP seminar are now available on lupop.lu.se You can find the presentations here.

https://www.lupop.lu.se/article/presentations-dmp-seminar - 2025-02-08

Published 8 May 2019 Intervju med Anna Axmon från LUPOP om vad LUPOP gör och varför man ska dela sina forskningsdata Läs mer här!

https://www.lupop.lu.se/article/las-om-lupop-i-medicinska-fakultetens-nyhetsbrev - 2025-02-08

Published 8 May 2019 To present the Uppsala Longitudinal Adolescent Depression Study, initiated in Uppsala, Sweden, in the early 1990s. The initial aim of this epidemiological investigation was to study the prevalence, characteristics and correlates of adolescent depression, and has subsequently expanded to include a broad range of social, economic and health-related long-term outcomes and cost-of

https://www.lupop.lu.se/article/uppsala-longitudinal-adolescent-depression-study-ulads - 2025-02-08

Published 10 May 2019 In a prestudy project LTH, RISE and Mobile Heights have run workshops with companies and public agencies to explore bridges and barriers for Swedish companies regarding sharing data between private and public stakeholders. The area is till in its infancy, but we have identified several interesting potentials to utilise and important hinders to address. This breakfast seminar

https://www.lupop.lu.se/article/digitlth-breakfast-seminar-open-collaborative-data - 2025-02-08

Published 9 May 2019 The efficacy of early supported discharge (ESD) has not been tested in current stroke care setting, which provide relatively short hospital stays, access to hyper-acute therapies and early carotid stenosis interventions. This study aimed to compare patient-reported outcome measures (PROM) among patients with stroke that received modern stroke unit care with or without ESD. New

https://www.lupop.lu.se/article/effect-early-supported-discharge-after-stroke-patient-reported-outcome-based-swedish-riksstroke - 2025-02-08

Published 10 May 2019 To describe the early experiences of a Nordic multidisciplinary cerebral palsy (CP) registry research program combining data from national medical quality registries, follow-up programs and cohort data, in addition to data from other national registries; to explore the scientific and practical uses of such research, and provide recommendations for facilitating similar work in

https://www.lupop.lu.se/article/flaunting-our-assets-making-most-nordic-registry-goldmine-cerebral-palsy-example - 2025-02-08

Published 11 May 2019 Trots stora satsningar på forskning halkar Sverige efter i forskningskvalitet. Under detta frukostseminarium presenterar Vetenskapsrådet tolv särskilt angelägna punkter för ett svenskt forskningssystem i världsklass. Datum: 21 maj 2019Tid: 08.30-09.30Arrangör: VetenskapsrådetSvensk forskning står inför ett antal utmaningar. Vi satsar mycket pengar på forskning, har en befolkn

https://www.lupop.lu.se/article/vagval-framtidens-forskningssystem - 2025-02-08

Published 11 May 2019 Under seminariet presenteras den andra, kvantitativa, delstudien av forskares attityder till forskningskommunikation och öppen vetenskap. Studien bygger på en webbenkät till cirka 18 000 forskare vid svenska lärosäten. Läs mer här.

https://www.lupop.lu.se/article/seminarium-om-forskningskommunikation-och-oppen-vetenskap - 2025-02-08

Published 13 May 2019 Pint of Science is an annual science festival that takes place every May and brings researchers to local fun places to tell you aout the latest happenings in the world of science. The perfect opportunity for you to meet the men and women shaping the science of tomorrow. Come and share a unique moment with them! Read more here.

https://www.lupop.lu.se/article/pint-science - 2025-02-08

Published 14 May 2019 NOTE! Application deadline is May 15! The course will cover central concepts and principles for design and critical interpretation of Nordic register-based studies, taking ethical considerations and legal principles into consideration as well as aspects of Open Science. More information and registration  

https://www.lupop.lu.se/article/key-concepts-and-principles-design-and-critical-interpretation-nordic-register-based-studies - 2025-02-08

Published 15 May 2019 Over the last decades the advent of digital documentation has provided research communities with valuable resources of information for clinical research. To utilize the potential of information about patients, their health care, and its outcome that is already available in different registers, the possibility to cross-reference information from different registers is inevitab

https://www.lupop.lu.se/article/de-identified-linkage-data-across-separate-registers-proposal-improved-protection-personal-0 - 2025-02-08

Published 16 May 2019 The aim of this mini-review was to describe the structure and the organization of the National Prostate Cancer Register (NPCR) with some examples on how data in NPCR have affected prostate cancer care in Sweden. New publication in Frontiers in medicine.Read more here

https://www.lupop.lu.se/article/mini-review-use-clinical-cancer-registers-prostate-cancer-national-prostate-cancer-register-npcr - 2025-02-08