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Nordic Health Registry-Based Research: A Review of Health Care Systems and Key Registries

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 5 August 2021 Photo: Wikimedia Commons / Søren Sigfusson The Nordic countries are Denmark, Finland, Iceland, Norway, and Sweden and comprise a total population of approximately 27 million. The countries provide unique opportunities for joint health registry-based research in large populations with long and complete follow-up,

https://www.lupop.lu.se/article/nordic-health-registry-based-research-review-health-care-systems-and-key-registries-0 - 2024-12-28

Covid-forskning från Lunds universitet

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 5 August 2021 Image from pixabay / pearson0612 En studie rörande effekter av åldersspecifika rekommendationer i samband med Covid-19-pandemin, i vilken flera forskare från Lunds universitet medverkat, har nyligen publicerats "pre-print" och i samband med detta uppmärksammats i diverse media. Preprint-artikeln finns att läsa på

https://www.lupop.lu.se/article/covid-forskning-fran-lunds-universitet - 2024-12-28

The impact of COVID-19 pandemic on vascular registries and clinical trials

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 11 August 2021 Photo: Pixabay / Arek Socha Quality improvement programs and clinical trial research experienced disruption due to the coronavirus disease 2019 (COVID-19) pandemic. Vascular registries showed an immediate impact with significant declines in second-quarter vascular procedure volumes witnessed across Europe and th

https://www.lupop.lu.se/article/impact-covid-19-pandemic-vascular-registries-and-clinical-trials - 2024-12-28

Open position: Professor at the Department of Public Health

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 11 August 2021 he Department of Public Health, Faculty of Health, Aarhus University invites applications for one to three positions as full professor in research fields of relevance for the Department of Public Health including research related to Biostatistics, Epidemiology, General Practice, Nursing, Public Health Science, S

https://www.lupop.lu.se/article/open-position-professor-department-public-health - 2024-12-28

Accurate population-based model for individual prediction of colon cancer recurrence

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 12 August 2021 Photo: Pixabay / Colin Behrens Prediction models are useful tools in the clinical management of colon cancer patients, particularly when estimating the recurrence rate and, thus, the need for adjuvant treatment. However, the most used models (MSKCC, ACCENT) are based on several decades-old patient series from cl

https://www.lupop.lu.se/article/accurate-population-based-model-individual-prediction-colon-cancer-recurrence - 2024-12-28

Utredning föreslår ny myndighet för att samla digital infrastruktur

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 12 August 2021 Photo: Pixabay / Gerd Altmann Den 11 augusti höll regeringen pressträff för att presentera resultatet av utredningen Organisation, styrning och finansiering av forskningsinfrastruktur. Utredningen har letts av Tobias Krantz och föreslår olika sätt att utveckla och stärka svensk forskningsinfrastruktur, bland ann

https://www.lupop.lu.se/article/utredning-foreslar-ny-myndighet-att-samla-digital-infrastruktur - 2024-12-28

Are responders to patient health surveys representative of those invited to participate?

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 16 August 2021 An analysis of the Patient-Reported Outcome Measures Pilot from the Australian Orthopaedic Association National Joint Replacement Registry Read the paper at https://journals.plos.org/plosone/article?id=10.1371/journal.pone.02541…

https://www.lupop.lu.se/article/are-responders-patient-health-surveys-representative-those-invited-participate - 2024-12-28

Coding practice in national and regional kidney biopsy registries

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 16 August 2021 Kidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed. This paper gives an overview over kidney biopsy registries, explores how the

https://www.lupop.lu.se/article/coding-practice-national-and-regional-kidney-biopsy-registries - 2024-12-28

The rise of registry-based research: a bibliometric analysis

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 17 August 2021 The main purpose of arthroplasty registries is to collect information on patients, techniques, and devices to monitor and improve the outcome of the specific procedure. This study analyses the role played by registries in the orthopedic research community and describes publication trends, characteristics, and pa

https://www.lupop.lu.se/article/rise-registry-based-research-bibliometric-analysis - 2024-12-28

Utility of linking survey and registry data to evaluate interventions and policies to address disparities in breast cancer survivorship among young women

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 17 August 2021 Cancer registry data, supplemented by patient surveys, can provide a broader understanding of the quality of care and financial impacts of breast cancer among young women. Read the full paper at https://doi.org/10.1016/j.evalprogplan.2021.101967

https://www.lupop.lu.se/article/utility-linking-survey-and-registry-data-evaluate-interventions-and-policies-address-disparities - 2024-12-28

The Danish Diabetes Musculoskeletal Cohort: Non-Responder Analysis of an Electronic Survey Using Registry Data

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 18 August 2021 Photo: Pixabay / Barroa_Artworks Our study found responder bias for age, but it did not exist for sex. Linking our sample frame to different national data registries, we determined that the characteristics of our non-responders were different from our responders on type of DM, CCI and SES. Read the paper at http

https://www.lupop.lu.se/article/danish-diabetes-musculoskeletal-cohort-non-responder-analysis-electronic-survey-using-registry-data - 2024-12-28

Prediction or causality? A scoping review of their conflation within current observational research

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 18 August 2021 Causal and prediction research usually require different methods, and yet their findings may get conflated when reported and interpreted. The aim of the current study is to quantify the frequency of conflation between etiological and prediction research, to discuss common underlying mistakes and provide recommen

https://www.lupop.lu.se/article/prediction-or-causality-scoping-review-their-conflation-within-current-observational-research - 2024-12-28

Ny studie från Lunds universitet och Region Skåne: Bröstdiagnostik för global hälsa

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 20 August 2021 Photo: flickr / Mitchell Joyce Vi planerar en studie som kommer att belysa om man kan använda ett billigt, men tekniskt förstärkt, fickultraljud för att undersöka kvinnor med symptom från brösten. Målet är att utveckla en undersökningsmetod som kan möjliggöra att kvinnor i länder med begränsade resurser får till

https://www.lupop.lu.se/article/ny-studie-fran-lunds-universitet-och-region-skane-brostdiagnostik-global-halsa - 2024-12-28

The impact of data quality assurance and control solutions on the completeness, accuracy, and consistency of data in a national spinal cord injury registry of Iran (NSCIR-IR)

By anna [dot] axmon [at] med [dot] lu [dot] se (Anna Axmon) - published 24 August 2021 Photo: Pixabay / Gerd Altmann This study aimed to develop and evaluate a systematic arrangement for improvement and monitoring of data quality of the National Spinal Cord (and Column) Injury Registry of Iran (NSCIR-IR)—a multicenter hospital-based registry. Read the paper at https://www.nature.com/articles/s4139

https://www.lupop.lu.se/article/impact-data-quality-assurance-and-control-solutions-completeness-accuracy-and-consistency-data - 2024-12-28

A far-reaching Regulation for the Italian National Registry of Implantable Prostheses: a possible model for other health registries

Published 25 August 2021 Photo: Pixabay / Sasin Tipchai Our aim is to identify a few key issues to shape a far-reaching Regulation that might permit the flexible and dynamic functioning of RIPI (Regulation of the Italian Implantable Prostheses Registry) providing suggestions for other registries at national and international level. Read the paper at https://www.iss.it/documents/20126/0/ANN_21_02_0

https://www.lupop.lu.se/article/far-reaching-regulation-italian-national-registry-implantable-prostheses-possible-model-other-health - 2024-12-28

Different, yet strong together: the Nordic Arthroplasty Register Association (NARA)

Published 27 August 2021 Photo: Pixabay / Angelo Esslinger The Nordic Arthroplasty Register Association (NARA) was established in 2007 by hip and knee arthroplasty registry leaders from Denmark, Norway, and Sweden. Purportedly, the idea of combining national databases was presented and discussed while sitting in a bar. Read the editorial at https://www.tandfonline.com/doi/full/10.1080/17453674.202

https://www.lupop.lu.se/article/different-yet-strong-together-nordic-arthroplasty-register-association-nara - 2024-12-28

Study Designs for Extending Causal Inferences From a Randomized Trial to a Target Population

Published 27 August 2021 Photo: Pixabay / Gerd Altmann In this article, we examine study designs for extending (generalizing or transporting) causal inferences from a randomized trial to a target population. Specifically, we consider nested trial designs, where randomized individuals are nested within a sample from the target population, and nonnested trial designs, including composite data-set de

https://www.lupop.lu.se/article/study-designs-extending-causal-inferences-randomized-trial-target-population - 2024-12-28

Causal analyses of existing databases: no power calculations required

Published 1 September 2021 Photo: Pixabay / Gerd Altmann A key misunderstanding is the belief that the goal of a causal analysis is to “detect” an effect. Causal effects are not binary signals that are either detected or undetected; causal effects are numerical quantities that need to be estimated. Read the paper at https://www.sciencedirect.com/science/article/abs/pii/S0895435621002730

https://www.lupop.lu.se/article/causal-analyses-existing-databases-no-power-calculations-required - 2024-12-28