Published 12 December 2019 The quality of data is crucial for clinical registry studies as it impacts credibility. In the regular practice of most such studies, a vulnerability arises from researchers recording data on paper-based case report forms (CRFs) and further transcribing them onto registry databases. New publication in Computer Methods and Programs in Biomedicine

https://www.lupop.lu.se/article/automated-data-verification-approach-improving-data-quality-clinical-registry - 2025-01-08

Published 13 December 2019 Public health constitutes a field of choice for developing interdisciplinary research. Targeting population health improvement necessarily entails embedding research and intervention within a variety of complementary disciplinary approaches. Medicine (and its scientific and professional domains), psychology, epidemiology, economics, social and political sciences, health

https://www.lupop.lu.se/article/interdisciplinary-research-public-health-why-and-how - 2025-01-08

Published 13 December 2019 Central cancer registries collect data and provide population-level statistics that can be tracked over time; yet registries may not capture the full range of clinically relevant outcomes. Patient-generated health data (PGHD) include health/treatment history, biometrics, and patient-reported outcomes (PROs). Collection of PGHD would broaden registry outcomes to better in

https://www.lupop.lu.se/article/cancer-survivor-perspectives-sharing-patient-generated-health-data-central-cancer-registries - 2025-01-08

Published 14 December 2019 Randomised controlled trials (RCTs) conducted using cohorts and routinely collected health data, including registries, electronic health records and administrative databases, are increasingly used in healthcare intervention research. The development of an extension of the CONsolidated Standards of Reporting Trials (CONSORT) statement for RCTs using cohorts and routinely

https://www.lupop.lu.se/article/protocol-scoping-review-support-development-consort-extension-randomised-controlled-trials-using - 2025-01-08

Published 14 December 2019 There is a worldwide development toward using data from hospital‐based stroke registers to estimate epidemiological trends. However, incomplete case ascertainment may cause selection bias. We examined the completeness of case ascertainment and selection bias in two hospital‐based Swedish stroke registers. New publication in Acta Neurologica Scandinavia

https://www.lupop.lu.se/article/completeness-case-ascertainment-swedish-hospital-based-stroke-registers - 2025-01-08

Published 15 December 2019 This is a multicentre, longitudinal, observational cohort study that includes (1) patients with a definite ACM diagnosis, (2) at-risk relatives of ACM patients, and (3) ACM-associated mutation carriers. At baseline and every follow-up visit, a medical history as well information regarding (non-)invasive tests is collected (e. g. electrocardiograms, Holter recordings, ima

https://www.lupop.lu.se/article/netherlands-arrhythmogenic-cardiomyopathy-registry-design-and-status-update - 2025-01-08

Published 15 December 2019 The purpose of the present study was to assess the agreement between self‐reported use of sleep medications and tranquilizers and dispensed hypnotics and anxiolytics. New publication in PDS

https://www.lupop.lu.se/article/agreement-between-self-reported-and-registry-based-use-sleep-medications-and-tranquilizers - 2025-01-08

Published 16 December 2019 The purpose of this paper is to understand what role researchers assign to online representations on the new digital communication sites that have emerged, such as Academia, ResearchGate or Mendeley. How are researchers’ online presentations created, managed, accessed and, more generally, viewed by academic researchers themselves? And how are expectations of the academic

https://www.lupop.lu.se/article/researchers-online-visibility-tensions-visibility-trust-and-reputation-0 - 2025-01-08

Published 16 December 2019 The promise of clinical registries lies in their ability to guide clinical practice with valid, specific, and high-quality information. While registries vary in their design and purpose, most are structured systems that compile organized clinical data for a given disease or groups of diseases. Participating institutions send information on patients to central repositorie

https://www.lupop.lu.se/article/leveraging-full-potential-clinical-registries - 2025-01-08

Published 17 December 2019 Patterns and determinants of long‐term oral corticosteroid (OCS) use in asthma and related morbidity and mortality are not well‐described. In a nationwide asthma cohort in Sweden, we evaluated the patterns and determinants of OCS use and risks of OCS‐related morbidities and mortality. New publication in Allergy

https://www.lupop.lu.se/article/oral-corticosteroid-use-morbidity-and-mortality-asthma-nationwide-prospective-cohort-study-sweden - 2025-01-08

Published 17 December 2019 Over the last several years, there has been increasing awareness around the unique challenges faced by adolescent and young adult (AYA) cancer patients. More cancer centers across the United States are introducing AYA-specific programs to help improve outcomes for these patients. However, given the nature of the United States health care system, there is little ability t

https://www.lupop.lu.se/article/argument-adolescent-and-young-adult-cancer-registry-one-model - 2025-01-08

Published 18 December 2019 Risk factors and consequences of asthma can be studied by using validated questionnaires. The overall objective of this study was to assess the agreement of parental-reported asthma-related questions regarding their children against Swedish health care registers. New publication in Pharmacoepidemiol Drug Saf.

https://www.lupop.lu.se/article/agreement-between-asthma-questionnaire-and-health-care-register-data-0 - 2025-01-08

Published 18 December 2019 New publication in Rev Esp Cardiol

https://www.lupop.lu.se/article/spanish-cardiovascular-imaging-registry-first-official-report-spanish-society-cardiology-working - 2025-01-08

Published 19 August 2022 Now that most people are back from their holidays, activities resume where they left off before the summer. Over the autumn, the Workplace of the Future project will focus on remote working among technical and administrative staff. The annual follow-up on secondary employment has come in and shows that we have become better at reporting, but there is still room for improve

https://www.staff.lu.se/article/new-semester-continued-development-and-improvements - 2025-01-08

By Ida [dot] Thelander [at] er [dot] lu [dot] se (Ida Thelander) - published 21 August 2022 Fenh-Hsiu Liu from Taiwan and Chifundo Cecilia Mphkuina from Malawi at Lund C. It is estimated that 3,000-3,500 new international students will arrive at Lund University this autumn to study. A total of 1,394 international students arrived during Arrival Days (15-16 August). The Arrival Days are followed by

https://www.staff.lu.se/article/arrival-days-international-students - 2025-01-08

By caroline [dot] cabot [at] uvet [dot] lu [dot] se (Caroline Cabot) - published 20 August 2022 All students should learn about sustainability at some point during their education, the Swedish Council for Higher Education has decided. What should be highlighted? And how? These questions will be covered in Sustainable Teaching & Learning in Higher Education: Principles & Practices, a new seminar se

https://www.staff.lu.se/article/seminar-series-sustainable-teaching-learning-higher-education-principles-practices - 2025-01-08

By claes [dot] lindskog [at] htbibl [dot] lu [dot] se (Claes Lindskog) - published 1 September 2022 To help you develop your academic English, the English Unit at the Centre for Language and Literature can again offer the popular course in “Written English for Scholarly Publication” (WESP). Your research deserves to be communicated efficiently, effectively, correctly, and with variation. It’s not

https://www.staff.lu.se/article/course-written-english-scholarly-publication - 2025-01-08

By Charlotte [dot] Hedin [at] hr [dot] lu [dot] se (Charlotte Hedin) - published 1 September 2022 If you were on leave with parental or sickness benefit during the salary review period, you can get compensation. If you were on leave with parental or sickness benefit during the salary review period, an agreement is in place between Lund University and the employee organisations Saco-S, OFR and SEKO

https://www.staff.lu.se/article/compensation-staff-parental-leave-or-sick-leave-when-salary-review-conducted - 2025-01-08

By Charlotte [dot] Hedin [at] hr [dot] lu [dot] se (Charlotte Hedin) - published 31 August 2022 During this semester activities for both doctoral students and postdocs, from all faculties, continues to be offered. Take the change to meet your colleagues from all over the university and explore and develop your career path, inside or outside academia. Among the activities you can find a lunch semin

https://www.staff.lu.se/article/joint-career-development-academic-staff - 2025-01-08

By maria [dot] moskovko [at] fs [dot] lu [dot] se (Maria Moskovko) - published 5 September 2022 Now, a second call for applications is being launched for projects with postdoctoral and associate senior lectureship positions. Deadline for pre-registration is 16th of September. Lund University is allocating up to SEK 100 million to a university-wide initiative for excellence at Lund University focus

https://www.staff.lu.se/article/interdisciplinary-projects-focusing-agenda-2030-and-sustainable-development - 2025-01-08