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In the Swedish population-based follow-up program and national quality registry for individuals with cerebral palsy (CPUP), physiotherapy (PT) and occupational therapy (OT) treatments are regularly recorded along with functional status. By Swedish law, all citizens irrespective of personal characteristics or socioeconomic status, have the right to receive healthcare and medical treatments as appli

https://www.lupop.lu.se/article/gender-differences-treatments-and-interventions-received-children-and-adolescents-cerebral-palsy - 2025-12-05

School bullying is a widespread phenomenon across the world, which involves bystanders who take on various roles. Motivation to defend victims is important to investigate because it helps us devise better, evidence-based, anti-bullying interventions. New publication in Child & youth Care Forum

https://www.lupop.lu.se/article/early-adolescents-emotional-and-behavioral-difficulties-student-teacher-relationships-and-motivation - 2025-12-05

The introduction of sacubitril/valsartan (an angiotensin receptor–neprilysin inhibitor) is likely to change the approach to the management of patients with chronic heart failure with reduced ejection fraction (HFrEF). The Assessment of Real Life Care–Describing European Heart Failure Management (ARIADNE) registry will evaluate patient characteristics, practice patterns, outcomes, and healthcare re

https://www.lupop.lu.se/article/management-heart-failure-reduced-ejection-fraction-europe-design-ariadne-registry - 2025-12-05

Continuously high rates of overdose deaths in Sweden led to the decision by the Skåne County to initiate the first regional take-home naloxone program in Sweden. The project aims to study the effect of overdose prevention education and naloxone distribution on overdose mortality in Skåne County. Secondary outcome measures include non-fatal overdoses and overdose-related harm in the general populat

https://www.lupop.lu.se/article/protocol-multi-site-study-effects-overdose-prevention-education-naloxone-distribution-program-skane - 2025-12-05

Fast-track referral is an increasingly used method for diagnostic evaluation of patients suspected of having cancer. This approach is challenging and not used as often for patients with only nonspecific symptoms. In order to expedite the diagnostics for these patients, we established Sweden’s first Diagnostic Center (DC) focusing on outcomes related to diagnoses and diagnostic time intervals. New

https://www.lupop.lu.se/article/diagnostic-spectrum-and-time-intervals-swedens-first-diagnostic-center-patients-nonspecific-symptoms - 2025-12-05

Routinely collected data are a powerful research resource and offer the opportunity to further our understanding of epilepsy mortality and Sudden Unexpected Death in Epilepsy (SUDEP). The advantages of using routinely collected data include that it often covers whole populations, is already collected, and can be easily linked to other data sources. A significant disadvantage is the difficulty in o

https://www.lupop.lu.se/article/sudep-and-mortality-epilepsy-role-routinely-collected-healthcare-data-registries-and-health - 2025-12-05

Cancer patients with ID were less likely than those without ID to have at least one visit in specialist inpatient (relative risk 0.90, 95% confidence interval 0.87-0.93) and outpatient (0.88, 0.85-0.91) health care, during their last year of life. Those with ID were more likely to have no or fewer return visits than the patients in the gPop cohort (5 vs. 11, P < 0.001), also when stratifying on se

https://www.lupop.lu.se/article/end-life-care-among-older-cancer-patients-intellectual-disability-comparison-general-population-0 - 2025-12-05

The first aim of this study was to investigate the prevalence of poor sleep in a sample of Swedish adolescents aged 15 to 19 years. The second aim was to investigate correlations between: a) sleep and psychiatric symptoms and; b) sleep and perceived stress. The third aim was to examine possible sex differences in sleep. New publication in Scandinavian Journal of Child and Adolescent Psychiatry and

https://www.lupop.lu.se/article/sleep-relation-psychiatric-symptoms-and-perceived-stress-swedish-adolescents-aged-15-19-years - 2025-12-05

Overweight and gestational diabetes are risk factors for pregnancy complications. We hypothesized that the metabolic impact of overweight on pregnancy outcome, would be different if it was combined with a predisposition for diabetes. The aim of this study was to compare the outcome of pregnancies in women with diabetes diagnosed later in life, to the outcome of pregnancies of women who did not dev

https://www.lupop.lu.se/article/women-predisposition-diabetes-have-increased-risk-pregnancy-complications-especially-combination - 2025-12-05

This study of 11,448 individuals was based on linked information from the Swedish BPSD registry, the National Patient Register and the Cause of Death register. BPSD was assessed with the Neuropsychiatric Inventory (NPI). Cox proportional hazards regressions were performed for survival analysis. To study different degrees of BPSD, data was categorized into groups: no (NPI, 0 points), mild (NPI, 1–3

https://www.lupop.lu.se/article/mortality-patients-behavioural-and-psychological-symptoms-dementia-registry-based-study - 2025-12-05

Osteoarthritis (OA) is the most common form of arthritis and a leading cause of disability worldwide. Metabolic comorbidities such as type II diabetes occur with a higher rate in people with OA than in the general population. Several factors including obesity, hyperglycaemia toxicity and physical inactivity have been suggested as potential links between diabetes and OA, and have been shown to nega

https://www.lupop.lu.se/article/understanding-role-diabetes-osteoarthritis-disease-and-treatment-process-study-protocol-swedish - 2025-12-05

Collecting clinical data is viewed as the gold standard for assessing health-care quality. However, considerable investment is needed if the quality of care is to be recorded over a long period of time. Accordingly, the question arises as to whether routine administrative data may be used for quality assurance purposes if certain methodological standards are followed. This present study now compar

https://www.lupop.lu.se/article/comparing-routine-administrative-data-registry-data-assessing-quality-hospital-care-patients - 2025-12-05

Den 6 april 2020 öppnar den fjärde transnationella utlysningen inom Joint Programming-initiativet More Years, Better Lives (JPI MYBL). Temat för utlysningen är Jämlikhet och välmående över generationer. Läs mer här.

https://www.lupop.lu.se/article/kommande-utlysning-jamlikhet-och-valmaende-over-generationer - 2025-12-05

The Swedish Research Council will grant an extension to the availability period of research projects at risk of being delayed due to COVID-19. Read more here.

https://www.lupop.lu.se/article/your-research-project-affected-covid-19 - 2025-12-05

The system aims to support researchers who receive or have received project funding from the Swedish Research Council (VR), or from other funders that demand the establishing of a DMP. A DMP is a document that provides a framework for how the research material is collected, handled, organized, stored and made available during the research process and how it should be preserved. Support for researc

https://www.lupop.lu.se/article/creating-data-management-plan-dmp-dmproadmap - 2025-12-05

The university has a new deal with Wiley which means that you pay no publishing fee to publish open access in all their journals (including hybrid journals). As a general rule regarding subsidies for OA journals, you get 50 % off the publishing fee if you chose any pure, serious OA journal, at the moment this subsidy is increased to 100 %. Read more about other publisher agreements here. You need

https://www.lupop.lu.se/article/financial-support-open-acess-publishing-fees - 2025-12-05

Cerebral palsy (CP) is one of the most common neurodevelopmental disabilities. Yet, most individuals with CP are adults. How individuals with CP fare in terms of health, quality of life (QoL), education, employment and income is largely unknown. Further, little is known about the effects of having a child with CP on the parents. New publication in BMJ Open

https://www.lupop.lu.se/article/cp-north-living-life-nordic-countries-retrospective-register-research-protocol-individuals-cerebral - 2025-12-05

n recent years, there have been significant changes in the perception of valvular and vascular allograft transplants. Despite the constant evolution of the field of transplant and the involvement of multiple surgical specialties, there is not an official registry for administrative and clinical control. This study aims to design a registry of vascular and valvular allograft transplantation in Cata

https://www.lupop.lu.se/article/registry-valvular-and-vascular-allograft-transplants-autonomous-community-catalonia-spain-revac - 2025-12-05

In line with Lund University's switch to distance education, the weekly LUPOP/SND drop-in will be moved to Zoom. The LUPOP/SND drop-in at Tornblad each Monday at 9-12 will be cancelled as long as the policy of Lund University is that all education should be provided online and not on campus. Instead, representative(s) of LUPOP and/or SND will be available for Zoom meetings. To set up an appointmen

https://www.lupop.lu.se/article/lupop-drop-zoom - 2025-12-05

Record linkage is increasingly used in health research worldwide. Combining the patient information available in healthcare, administrative and clinical databases broadens the research perspectives, particularly for chronic diseases. Recent guidelines highlight the need for transparency on the used record linkage processes and the extracted data to be used by researchers. New publication in BMC Ne

https://www.lupop.lu.se/article/linking-disease-registries-and-nationwide-healthcare-administrative-databases-french-renal - 2025-12-05