Published 16 October 2020 Robust (inter-)national breast implant registries are important. For some, registries are an administrative burden, for others they represent a solution for the discussions involving breast implants. The DBIR is one of the first national, opt-out, clinical registries of breast implants, providing information for clinical auditing and product recall. Four years after its i

https://www.lupop.lu.se/article/national-dutch-breast-implant-registry-user-reported-experiences-and-importance - 2025-02-09

Published 16 October 2020 Increasing attention has been given to the long-term effects of assisted reproductive technology (ART). This study assessed the validity and completeness of ART as registered in the Medical Birth Registry of Norway (MBRN) using drug prescription data from the Norwegian Prescription Database (NorPD) as reference. Read more at https://journals.lww.com/epidem/Abstract/2020/0

https://www.lupop.lu.se/article/validation-assisted-reproductive-technology-medical-birth-registry-norway-versus-norwegian - 2025-02-09

Published 17 October 2020 While the primary role of central cancer registries in the United States is to provide vital information needed for cancer surveillance and control, these registries can also be leveraged for population-based epidemiologic studies of cancer survivors. Read more at https://cebp.aacrjournals.org/content/cebp/29/9/1699.full.pdf?casa_token=eFOpkXwydrgAAAAA:9zvXp0TgWAkIvMk8JLb

https://www.lupop.lu.se/article/utilizing-seer-cancer-registries-population-based-cancer-survivor-epidemiologic-studies-feasibility - 2025-02-09

Published 20 March 2018 Den nya lagen innehåller kompletterande bestämmelser till EU:s dataskyddsförordning (GDPR). Om riksdagen antar regeringens förslag så börjar dataskyddslagen gälla den 25 maj, samtidigt som dataskyddsförordningen. Läs mer på bloggen "Projekt för framtida hantering av personuppgifter".

https://www.lupop.lu.se/article/regeringen-foreslar-ny-lag-som-ska-komplettera-gdpr - 2025-02-09

Published 17 October 2020 Severe asthma exerts a disproportionately heavy burden on patients and health care. Due to the heterogeneity of the severe asthma population, many patients need to be evaluated to understand the clinical features and outcomes of severe asthma in order to facilitate personalised and targeted care. The International Severe Asthma Registry (ISAR) is a multi-country registry

https://www.lupop.lu.se/article/international-severe-asthma-registry-isar-protocol-global-registry - 2025-02-09

Published 18 October 2020 In this article, several independent populations following exponential distribution with common location parameter and unknown and unequal scale parameters are considered. From these populations, several independent samples of generalized order statistics (gos) are drawn. Under the setup of gos, the problem of estimation of common location parameter is discussed and vario

https://www.lupop.lu.se/article/estimation-common-location-parameter-several-heterogeneous-exponential-populations-based-generalized - 2025-02-09

Published 18 October 2020 Information about how risk for bipolar disorder is transmitted across generations and how parental risk for bipolar disorder relates to their children's risk for schizophrenia and major depression is limited. Read more at https://pubmed.ncbi.nlm.nih.gov/32186664/

https://www.lupop.lu.se/article/extended-swedish-national-adoption-study-bipolar-disorder-illness-and-cross-generational-familial - 2025-02-09

Published 19 October 2020 Non-Alcoholic Fatty Liver Disease (NAFLD), a progressive liver disease that is closely associated with obesity, type 2 diabetes, hypertension and dyslipidaemia, represents an increasing global public health challenge. There is significant variability in the disease course: the majority exhibit only fat accumulation in the liver but a significant minority develop a necroin

https://www.lupop.lu.se/article/european-nafld-registry-real-world-longitudinal-cohort-study-nonalcoholic-fatty-liver-disease - 2025-02-09

Published 19 October 2020 This paper measures consumption expenditures using registry data on income and asset holdings in Sweden. We show how a registry-based measure complements traditional survey measures of consumption and can alleviate some critical limitations. We describe the construction of our measure, which builds on prior work and exploits the identity coming from the household budget c

https://www.lupop.lu.se/article/value-registry-data-consumption-analysis-application-health-shocks - 2025-02-09

Published 20 October 2020 Pelvic floor disorders (PFDs) are important public health concerns due to their increasing prevalence. Hence, there is an increasing need for developing systematically collected quality data to assist appropriate clinical decision‐making. This study aimed to develop a core data set for patients with PFDs based on the PFDs registry. Read more at https://onlinelibrary.wiley

https://www.lupop.lu.se/article/development-core-data-set-pelvic-floor-disorder-patients-registry - 2025-02-09

Published 20 October 2020 Dementia was identified as a priority area for the development of a Clinical Quality Registry (CQR) in Australia in 2016. The Australian Dementia Network (ADNeT) Registry is being established as part of the ADNeT initiative, with the primary objective of collecting data to monitor and enhance the quality of care and patient outcomes for people diagnosed with either dement

https://www.lupop.lu.se/article/protocol-clinical-quality-registry-dementia-and-mild-cognitive-impairment-mci-australian-dementia - 2025-02-09

Published 21 October 2020 Independent disease registries for pre-and post-approval of novel treatments for rare diseases are increasingly important for healthcare professionals, patients, regulators and the pharmaceutical industry. Current registries for rare diseases to evaluate orphan drugs are mainly set up and owned by the pharmaceutical industry which leads to unacceptable conflicts of intere

https://www.lupop.lu.se/article/registries-orphan-drugs-generating-evidence-or-marketing-tools - 2025-02-09

Published 21 March 2018 Ragnar Söderbergs stiftelse finansierar projekt vid Stockholms och Lunds Universitet En framgångsrik digitalisering resulterar i ett unikt dataset som kastar nytt ljus på svensk industrihistoria. Planen är att göra datasetet offentligt, och bedömningen är att det kan bli internationellt uppmärksammat och användas i historiska studier av industrialisering.Läs mer här.

https://www.lupop.lu.se/article/projekt-att-digitalisera-svensk-industridata-beviljas-13-miljoner-kronor - 2025-02-09

Published 21 October 2020 Recruitment for Alzheimer's disease (AD)-focused studies, particularly prevention studies, is challenging due to the public's lack of awareness about study opportunities coupled with studies' inclusion and exclusion criteria, resulting in a high screen fail rate. Read more at https://pubmed.ncbi.nlm.nih.gov/32920626/

https://www.lupop.lu.se/article/alzheimers-prevention-registry-large-internet-based-participant-recruitment-registry-accelerate - 2025-02-09

Published 22 October 2020 Hypertension (HTN) has become a major public health problem which can cause serious complications when it is not well-controlled. Prevention and effective care of HTN require a population-based registry. Thus, establishing this registry can be used to collect comprehensive, timely, and reliable data on epidemiology cases. The aim is to create a registry for the collection

https://www.lupop.lu.se/article/improving-hypertension-surveillance-data-management-prospective-data-requirements-implementation - 2025-02-09

Published 22 October 2020 The risk of complications and medical consequences of type 2 diabetes are well known. Hospital costs have been identified as a key driver of total costs in studies of the economic burden of type 2 diabetes. Less evidence has been generated on the impact of individual diabetic complications on the overall societal burden. The objective of this study was to analyse costs of

https://www.lupop.lu.se/article/costs-diabetes-complications-hospital-based-care-and-absence-work-392200-people-type-2-diabetes-and - 2025-02-09

Published 23 October 2020 Non-Western immigrants to Europe are at high risk for type 2 diabetes. In this nationwide study including incident cases of type 2 diabetes, the aim was to compare all-cause mortality (ACM) and cause-specific mortality (CSM) rates in first- and second-generation immigrants with native Swedes. Read more at https://pubmed.ncbi.nlm.nih.gov/32979073/

https://www.lupop.lu.se/article/mortality-first-and-second-generation-immigrants-sweden-diagnosed-type-2-diabetes-10-year-nationwide - 2025-02-09

Published 23 October 2020 Several prediction models for falls/near falls in Parkinson’s disease (PD) have been proposed. However, longitudinal predictors of frequency of falls/near falls are poorly investigated. Therefore, we aimed to identify short- and long-term predictors of the number of falls/near falls in PD. Read more at https://link.springer.com/article/10.1007/s00415-020-10234-6

https://www.lupop.lu.se/article/longitudinal-prediction-falls-and-near-falls-frequencies-parkinsons-disease-prospective-cohort-study - 2025-02-09

Published 24 October 2020 The objective was to describe the epidemiology, bacteriology, clinical presentation, risk factors for endocarditis (IE), diagnostic workup, and outcome of patients with bacteremia caused by the non-influenzae Haemophilus, Aggregatibacter, Cardiobacterium, Eikenella, and Kingella genera (HACEK). A retrospective population-based cohort of patients with bacteremia collected

https://www.lupop.lu.se/article/epidemiology-bacteriology-and-clinical-characteristics-hacek-bacteremia-and-endocarditis-population - 2025-02-09

Published 24 October 2020 Higher socioeconomic status (SES) is associated with lower mortality, and this correlation has been confirmed using different indicators across several geographical settings. Nevertheless, the timing of the emergence of the SES gradient remains unclear. We used individual-level longitudinal data for a regional population in southern Sweden covering the period between 1813

https://www.lupop.lu.se/article/ses-inequalities-cause-specific-adult-mortality-study-long-term-trends-using-longitudinal-individual - 2025-02-09