Published 17 April 2019 The questionnaire measures and detects differences in patient well-being, abilities and judgements of diabetes care, and identifies areas for improvement. To further improve diabetes care, we conclude that patient-reported measures are important supplements to cardiovascular and diabetes complication risk factors, reflecting patient experiences of living with diabetes and d

https://www.lupop.lu.se/article/patient-reported-outcome-and-experience-measures-diabetes-development-scale-models-differences - 2025-02-28

Published 18 April 2019 There has been marked growth in reports addressing exposure-affected time-varying confounding. This was driven by work in a small number of topic areas, with other areas showing relatively little uptake. In addition, despite developments in more advanced methods such doubly robust techniques and estimation via machine learning, implementation has been largely concentrated o

https://www.lupop.lu.se/article/causal-models-adjusting-time-varying-confounding-systematic-review-literature - 2025-02-28

Published 15 April 2019 Valentin Amrhein, Sander Greenland, Blake McShane and more than 800 signatories call for an end to hyped claims and the dismissal of possibly crucial effects. Read more here.

https://www.lupop.lu.se/article/scientists-rise-against-statistical-significance - 2025-02-28

Published 17 April 2019 Impressions from SND workshop on data management plans Click here to read the newsletter!

https://www.lupop.lu.se/article/new-issue-lu-snddosp-newsletter - 2025-02-28

Published 23 April 2019 The Board of EAO (European Association for Osseointegration) has discussed an initiative to explore the conditions to establish a Dental Implant Register. It was suggested to bring this issue to the EAO Consensus Conference 2018 for a discussion and to possibly propose relevant and manageable parameters. This article presents some select examples from quality registers in t

https://www.lupop.lu.se/article/dental-implant-quality-register-possible-tool-further-improve-implant-treatment-and-outcome - 2025-02-28

Published 24 April 2019 Internet-based reporting for patient-reported outcomes in a clinical setting resulted in similar data for VASs and corresponding disease activity scores to clinic-based reporting on paper forms. New publication in Scandinavian Journal of RheumatologyRead more here

https://www.lupop.lu.se/article/comparison-agreement-between-internet-based-registration-patient-reported-outcomes-and-clinic-based - 2025-02-28

Published 25 April 2019 Over the last decades the advent of digital documentation has provided research communities with valuable resources of information for clinical research. To utilize the potential of information about patients, their health care, and its outcome that is already available in different registers, the possibility to cross-reference information from different registers is inevit

https://www.lupop.lu.se/article/de-identified-linkage-data-across-separate-registers-proposal-improved-protection-personal - 2025-02-28

Published 26 April 2019 Surgery for oesophageal and gastric cancers is associated with high morbidity, mortality and poor quality of life postoperatively. The Finnish National Esophago-Gastric Cancer Cohort has been established with the aim of identifying factors that could contribute to improved outcomes in oesophago-gastric cancer. New publication in BMJ Open.Read more here

https://www.lupop.lu.se/article/finnish-national-esophago-gastric-cancer-cohort-finego-studying-outcomes-after-oesophageal-and - 2025-02-28

Published 29 April 2019 En fallstudie av några forskningsorienterade institutioner Läs mer här

https://www.lupop.lu.se/article/externfinansieringens-roll-i-svensk-hogskoleforskning - 2025-02-28

Published 30 April 2019 In Sweden, the results of the TASTE trial were impactful in daily clinical practice and led to a relevant decrease in TA use in ST-segment-elevation myocardial infarction patients undergoing percutaneous revascularization. New publication in Circulation Cardiovascular interventions.Read more here.

https://www.lupop.lu.se/article/assessing-nationwide-impact-registry-based-randomized-clinical-trial-cardiovascular-practice - 2025-02-28

Published 2 May 2019 The revised GEP are addressed to everyone involved in the planning, preparation, execution, analysis, and evaluation of epidemiological research, as well as research institutes and funding bodies. New publication in European Journal of EpidemiologyRead more here

https://www.lupop.lu.se/article/guidelines-and-recommendations-ensuring-good-epidemiological-practice-gep-guideline-developed-german - 2025-02-28

Published 2 May 2019 Nätverks-nytt nr 2, april 2019 Läs mer här

https://www.lupop.lu.se/article/nyhetsbrev-snd-natverket - 2025-02-28

Published 3 May 2019 Acromegaly is a rare disease, associated with multiple organs and systems damage. Thanks to implementation of registries, systematic data gathering, knowledge sharing and standardizing medical practices for optimal care greatly improved. New publication in Best practice & Research. Clinial Endocrinology & MetabolismRead more here

https://www.lupop.lu.se/article/national-acromegaly-registries - 2025-02-28

Published 6 May 2019 Data repositories have the potential to play an important role in the effective and safe sharing of individual-participant data (IPD) from clinical studies. We analysed the current landscape of data repositories to create a detailed description of available repositories and assess their suitability for hosting data from clinical studies, from the perspective of the clinical re

https://www.lupop.lu.se/article/evaluation-repositories-sharing-individual-participant-data-clinical-studies - 2025-02-28

Published 23 November 2017 Abolishment of the confidentiality agreement for data requests is expected to speed up the delivery process of data from SoS. According to a post on linkedin.com, the Swedish National Board of Health and Welfare (Socialstyrelsen, SoS) has abolished the confidentiality agreement for data requests.

https://www.lupop.lu.se/article/faster-delivery-sos-data - 2025-02-28

Published 7 May 2019 Recent prostate cancer screening trials have given conflicting results and it is unclear how to reduce prostate cancer mortality while minimising overdiagnosis and overtreatment. Prostate cancer testing is a partially observable process, and planning for testing requires either extrapolation from randomised controlled trials or, more flexibly, modelling of the cancer natural h

https://www.lupop.lu.se/article/natural-history-model-planning-prostate-cancer-testing-calibration-and-validation-using-swedish - 2025-02-28

Published 7 May 2019 The presentations from the DMP seminar are now available on lupop.lu.se You can find the presentations here.

https://www.lupop.lu.se/article/presentations-dmp-seminar - 2025-02-28

Published 8 May 2019 Intervju med Anna Axmon från LUPOP om vad LUPOP gör och varför man ska dela sina forskningsdata Läs mer här!

https://www.lupop.lu.se/article/las-om-lupop-i-medicinska-fakultetens-nyhetsbrev - 2025-02-28

Published 8 May 2019 To present the Uppsala Longitudinal Adolescent Depression Study, initiated in Uppsala, Sweden, in the early 1990s. The initial aim of this epidemiological investigation was to study the prevalence, characteristics and correlates of adolescent depression, and has subsequently expanded to include a broad range of social, economic and health-related long-term outcomes and cost-of

https://www.lupop.lu.se/article/uppsala-longitudinal-adolescent-depression-study-ulads - 2025-02-28

Published 10 May 2019 In a prestudy project LTH, RISE and Mobile Heights have run workshops with companies and public agencies to explore bridges and barriers for Swedish companies regarding sharing data between private and public stakeholders. The area is till in its infancy, but we have identified several interesting potentials to utilise and important hinders to address. This breakfast seminar

https://www.lupop.lu.se/article/digitlth-breakfast-seminar-open-collaborative-data - 2025-02-28