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The AVIATOR registry: the importance of evaluating long-term patient outcomes

Published 22 August 2019 Being a technically gifted surgeon is not enough to make you a good aortic valve repair surgeon. An additional requirement is the long-term evaluation of the treatment and comparison of your results to other surgeons. The AVIATOR registry, outlined below, enables surgeons to evaluate their results and fulfill this requirement. New publication in Annals of Cardiothoracic Su

https://www.lupop.lu.se/article/aviator-registry-importance-evaluating-long-term-patient-outcomes - 2025-01-28

Building a tobacco user registry by extracting multiple smoking behaviors from clinical notes

Published 23 August 2019 Usage of structured fields in Electronic Health Records (EHRs) to ascertain smoking history is important but fails in capturing the nuances of smoking behaviors. Knowledge of smoking behaviors, such as pack year history and most recent cessation date, allows care providers to select the best care plan for patients at risk of smoking attributable diseases. New publication i

https://www.lupop.lu.se/article/building-tobacco-user-registry-extracting-multiple-smoking-behaviors-clinical-notes - 2025-01-28

Networks for early career epidemiologists around the world: the current status and future directions

Published 26 August 2019 In any field of science, career development is a critical issue for early career professionals, and many attempts have been made to support their development. Networking is considered important for early career researchers because it can help them form collaborations which are good opportunities to start new research, produce highly influential work8 and find jobs. Thus, m

https://www.lupop.lu.se/article/networks-early-career-epidemiologists-around-world-current-status-and-future-directions - 2025-01-28

The Norwegian Patient Registry and the Norwegian Registry for Primary Health Care: Research potential of two nationwide health-care registries

Published 27 August 2019 In Norway, the Directorate of Health is responsible for two nationwide registries – the Norwegian Patient Registry (NPR) and the Norwegian Registry for Primary Health Care (NRPHC) – which together cover all governmental-funded health care. The NPR (specialist health care) was established in 2008, while the NRPHC (primary health care) was established in 2017. New publicatio

https://www.lupop.lu.se/article/norwegian-patient-registry-and-norwegian-registry-primary-health-care-research-potential-two - 2025-01-28

Food patterns in relation to weight change and incidence of type 2 diabetes, coronary events and stroke in the Malmö Diet and Cancer cohort

Published 28 August 2019 The study included 20,487 individuals (61% women) from the Malmö Diet and Cancer cohort, 45–74 years, without diabetes and CVD at baseline (1991–1996) and who did not report dietary changes. Diet was measured with a modified diet history method. During 15 years follow-up, 2206 T2D, 1571 CE and 1332 stroke cases were identified. Data on weight change after 16.7 years were a

https://www.lupop.lu.se/article/food-patterns-relation-weight-change-and-incidence-type-2-diabetes-coronary-events-and-stroke-malmo - 2025-01-28

Editor's Choice - Recommendations for Registry Data Collection for Revascularisations of Acute Limb Ischaemia: A Delphi Consensus from the International Consortium of Vascular Registries.

Published 29 August 2019 A modified Delphi study allowed 37 international vascular registry experts to achieve a consensus recommendation for a minimum core and an optimum data set for registries covering patients who undergo ALI revascularisation. Continued global harmonisation of registry infrastructure and definition of items allows international comparisons and global quality improvement. Furt

https://www.lupop.lu.se/article/editors-choice-recommendations-registry-data-collection-revascularisations-acute-limb-ischaemia - 2025-01-28

Neighborhood linking social capital as a predictor of lung cancer: A Swedish national cohort study

Published 30 August 2019 The aim of this nationwide follow-up study was to examine whether neighborhood linking social capital is associated with lung cancer, including incident and mortality cases, after adjustment for individual- and familial-level factors. New publication in Cancer EpidemiologyRead more here

https://www.lupop.lu.se/article/neighborhood-linking-social-capital-predictor-lung-cancer-swedish-national-cohort-study - 2025-01-28

Combining population-based administrative health records and electronic medical records for disease surveillance

Published 2 September 2019 Administrative health records (AHRs) and electronic medical records (EMRs) are two key sources of population-based data for disease surveillance, but misclassification errors in the data can bias disease estimates. Methods that combine information from error-prone data sources can build on the strengths of AHRs and EMRs. We compared bias and error for four data-combining

https://www.lupop.lu.se/article/combining-population-based-administrative-health-records-and-electronic-medical-records-disease - 2025-01-28

Accounting for missing data in statistical analyses: multiple imputation is not always the answe

Published 4 September 2019 Missing data are unavoidable in epidemiological research, potentially leading to bias and loss of precision. Multiple imputation (MI) is widely advocated as an improvement over complete case analysis (CCA). However, contrary to widespread belief, CCA is preferable to MI in some situations. New publication in International Journal of EpidemiologyRead more here

https://www.lupop.lu.se/article/accounting-missing-data-statistical-analyses-multiple-imputation-not-always-answe - 2025-01-28

Establishing a regional paediatric registry improved the overview and detection of side effects in children on anticoagulants.

Published 5 September 2019 The use of oral anticoagulants is rarer in children than adults, but studies indicate that their paediatric use is increasing. Warfarin has been used in children, at the discretion of the treating physician, but both the number of children and the data on its use are limited New publication in Acta Paediatr.Read more here

https://www.lupop.lu.se/article/establishing-regional-paediatric-registry-improved-overview-and-detection-side-effects-children - 2025-01-28

Cancer therapy and risk of congenital malformations in children fathered by men treated for testicular germ-cell cancer: A nationwide register study

Published 6 September 2019 Because of the potential mutagenic effects of chemo- and radiotherapy, there is concern regarding increased risk of congenital malformations (CMs) among children of fathers with cancer. Previous register studies indicate increased CM risk among children conceived after paternal cancer but lack data on oncological treatment. Increased CM risk was recently reported in chil

https://www.lupop.lu.se/article/cancer-therapy-and-risk-congenital-malformations-children-fathered-men-treated-testicular-germ-cell - 2025-01-28

FAIR data stewardship: Supporting FAIR data interoperability

Published 3 September 2019 A fully fledged 5-day training event which will provide the much needed foundational skills for competent data stewards and data managers in the Nordic countries with knowledge of the FAIR principles and their application. The course will be held by two trainers from GO-FAIR and provides a broad but fairly technical introduction to data stewardship. Read more here.

https://www.lupop.lu.se/article/fair-data-stewardship-supporting-fair-data-interoperability - 2025-01-28

Etikprövningsmyndigheten inför nytt ärendehanteringssystem

Published 4 September 2019 Etikprövningsmyndigheten lämnar nu det ärendehanteringssystem som utvecklats i Prisma för etikprövningar. Anledningen är att det inte ger det stöd som var avsikten. Nu upphandlas istället ett nytt system och ambitionen är att det nya ska finnas på plats under 2020. Tills dess kommer myndigheten använda en övergångslösning för att hantera etikprövningar. Prisma stängs för

https://www.lupop.lu.se/article/etikprovningsmyndigheten-infor-nytt-arendehanteringssystem - 2025-01-28