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Big Data in Vascular Surgery: Registries, International Collaboration and Future Directions

Given the increasing availability of large data set, small single-institutional series raise decreasing attention. Rapid expansion of technology from electronic medical records to easily accessible internet access, and widespread use and acceptance of registries in the medical world has allowed for research and quality improvement efforts using 'big data'. Big data, although technically not define

https://www.lupop.lu.se/article/big-data-vascular-surgery-registries-international-collaboration-and-future-directions - 2025-10-19

Self-rated health and venous thromboembolism among middle-aged women: a population-based cohort study

Venous thromboembolism (VTE) is one of the most common types of cardiovascular diseases (CVDs) and is associated with increased mortality-risk. Poor-self rated health (SHR) has been associated with elevated inflammatory markers and CVDs. However, little is known about as a predictor of incident VTE. To examine the association between self-rated health, lifestyle and incident VTE among middle-aged

https://www.lupop.lu.se/article/self-rated-health-and-venous-thromboembolism-among-middle-aged-women-population-based-cohort-study - 2025-10-19

Socioeconomic Status and Survival After Stroke - Using Mediation and Sensitivity Analyses to Assess the Effect of Stroke Severity and Unmeasured Confounding

Although it has been established that low socioeconomic status is linked to increased risk of death after stroke, the mechanisms behind this link are still unclear. In this study we aim to shed light on the relationship between income level and survival after stroke by investigating the extent to which differences in stroke severity account for differences in survival. New publication in BMC Publi

https://www.lupop.lu.se/article/socioeconomic-status-and-survival-after-stroke-using-mediation-and-sensitivity-analyses-assess - 2025-10-19

Health-related quality of life and scar satisfaction in a cohort of children operated on for sacrococcygeal teratoma

The aims of this study were to evaluate health-related quality of life (HRQoL) in children with sacrococcygeal teratoma and to explore the effect of the scar on physical, emotional and behavioral aspects. New publication in Health and Quality of Life Outcomes

https://www.lupop.lu.se/article/health-related-quality-life-and-scar-satisfaction-cohort-children-operated-sacrococcygeal-teratoma - 2025-10-19

Delivery after an obstetric anal sphincter tear

This population-based case–control study included women who experienced OASIS 1997–2002. 26,598 women with OASIS were included from countries with low (Finland) and high (Norway and Sweden) OASIS incidences. Each case was matched with one background-adjusted control without OASIS. A follow-up data, including all subsequent deliveries between 1998 and 2011 were then collected. Statistics signifcanc

https://www.lupop.lu.se/article/delivery-after-obstetric-anal-sphincter-tear - 2025-10-19

The A4 study: β ‐amyloid and cognition in 4432 cognitively unimpaired adults

β ‐amyloid accumulation was linked to significant cognitive dysfunction in cognitively unimpaired participants with subthreshold levels of β ‐amyloid in multiple measures of memory (Logical Memory Delayed Recall, P = 0.03; Free and Cued Selective Reminding Test, P < 0.001), the Preclinical Alzheimer’s Cognitive Composite (P = 0.01), and was marginally associated with decreased executive function (

https://www.lupop.lu.se/article/a4-study-b-amyloid-and-cognition-4432-cognitively-unimpaired-adults - 2025-10-19

A cross‐sectional study of distress: A cancer response

A large proportion of patients (29%) continued to experience high distress (>3 according to the Distress Thermometer) even after treatment was completed. Patients experienced several problems after treatment had ended such as fatigue (44%), sleep problems (34%), worries (31%), pain (31%), tingling in hands and feet (31%) and problems with memory/concentration (30%). Patients with financial/insuran

https://www.lupop.lu.se/article/cross-sectional-study-distress-cancer-response - 2025-10-19

The Social Network: How Friends’ Online Behavior and Belongingness Needs Influence Political Activity

Are people more likely to become more politically active through social media when they observe that their friends are active? Previous research has shown that an individual's likelihood of engaging politically is influenced by observations of how friends act through social media, but relatively little is known about how such social influence through social media interacts with personality feature

https://www.lupop.lu.se/article/social-network-how-friends-online-behavior-and-belongingness-needs-influence-political-activity - 2025-10-19

The Data Registry of the European Competence Network on Mastocytosis (ECNM): Set Up, Projects, and Perspectives

In an attempt to learn more about the behavior and evolution of various forms of CM and SM, the European Competence Network on Mastocytosis (ECNM) initiated a mastocytosis registry in 2012. In this article, the set up and start phase of this registry are described New publication in The Journal of Allergy and Clinical Immunology: In Practice

https://www.lupop.lu.se/article/data-registry-european-competence-network-mastocytosis-ecnm-set-projects-and-perspectives-0 - 2025-10-19

Non‐immune hydrops fetalis was rare in Sweden during 1997‐2015, but cases were associated with complications and poor prognosis

There were 309 cases of NIHF at birth corresponding to an incidence of 1.6 per 10 000, lower than in previous studies. NIHF was more frequent in mothers aged ≥35 years and with a history of stillbirth. Preterm delivery occurred in 77.7% in the NIHF group, including 31.7% before 32 weeks of gestation. Multiple births and Caesarean sections were reported more frequent in the NIHF group. NIHF was ass

https://www.lupop.lu.se/article/non-immune-hydrops-fetalis-was-rare-sweden-during-1997-2015-cases-were-associated-complications-and - 2025-10-19

Urolithiasis in second‐generation immigrant children younger than 18 years of age in Sweden

A nationwide study of individuals residing in Sweden. Urolithiasis was defined as having at least one registered diagnosis of urolithiasis in the Swedish National Patient Register between January 1, 1998 and December 31, 2015. Cox regression analysis was used to estimate the relative risk (hazard ratios (HR) with 95% confidence intervals (CI)) of incident urolithiasis compared to individuals with

https://www.lupop.lu.se/article/urolithiasis-second-generation-immigrant-children-younger-18-years-age-sweden - 2025-10-19

The “A” of FAIR – As Open as Possible, as Closed as Necessary Show all authors

In order to provide responsible access to health data by reconciling benefits of data sharing with privacy rights and ethical and regulatory requirements, Findable, Accessible, Interoperable and Reusable (FAIR) metadata should be developed. According to the H2020 Program Guidelines on FAIR Data, data should be “as open as possible and as closed as necessary”, “open” in order to foster the reusabil

https://www.lupop.lu.se/article/fair-open-possible-closed-necessary-show-all-authors - 2025-10-19

Survival in 31 670 patients with thin melanomas: a Swedish population‐based study

Clinical and histological parameters were obtained from the Swedish Melanoma Registry for patients diagnosed with thin CMM between 1990 and 2017. Patients were followed until the end of 2017. MSS as well as CMSS for different thickness groups were calculated using the Kaplan–Meier method and Cox regression analyses were used to calculate for survival differences between thickness groups. New publi

https://www.lupop.lu.se/article/survival-31-670-patients-thin-melanomas-swedish-population-based-study - 2025-10-19

Communication ability and communication methods in children with cerebral palsy

Communication ability and method were related to each other and to age, gross motor function, and manual ability. Aided communication methods were more frequently used among older children. The more functional the communication was, the less use of unaided communication occurred. Different communication methods were used across all Communication Function Classification System (CFCS) levels. Speech

https://www.lupop.lu.se/article/communication-ability-and-communication-methods-children-cerebral-palsy - 2025-10-19

Parental anxiety after 5 years of participation in a longitudinal study of children at high risk of type 1 diabetes

Parents of children participating in screening studies may experience increased levels of anxiety. The aim of this study was to assess parental anxiety levels after 5 years of participation in the Diabetes Prediction in Skåne study. Associations between parental anxiety about their child developing type 1 diabetes and clinical, demographic, and immunological factors were analyzed. New publication

https://www.lupop.lu.se/article/parental-anxiety-after-5-years-participation-longitudinal-study-children-high-risk-type-1-diabetes - 2025-10-19

Psychometric evaluation of the Swedish Quality of Dyadic Relationships scale – homogeneity and construct validity

The Quality of Dyadic Relationships is a self‐assessment scale used to evaluate various aspects of relationship quality. Psychometric evaluation by the developers of the instrument has led to a nontested amended version. Further psychometric testing is thus warranted, and the aim of this study was to evaluate homogeneity, construct validity (in terms of concurrent, discriminant and known‐groups va

https://www.lupop.lu.se/article/psychometric-evaluation-swedish-quality-dyadic-relationships-scale-homogeneity-and-construct - 2025-10-19

"Vetenskapligt råd i e-hälsa bör innefatta nationell högspecialiserad vård"

Vetenskapligt råd i e-hälsa bör innefatta nationell högspecialiserad vård (NHV) och barnperspektiv. Det skriver forskare från forskningsprogrammet eChildHealth, i en debattartikel i Läkartidningen. I forskningsprogrammet eChildHealth utvecklas barnsjukvård med stöd av e-hälsa, för barn och ungdomar med långvariga sjukdomar. Forskningen bedrivs av ett flervetenskapligt forskarteam inom vårdvetenska

https://www.barnfamiljhalsa.lu.se/nyhet/220223 - 2025-10-19

Forskningsmöte om e-hälsa

Under veckan samlades en arbetsgrupp inom forskningsprogrammet eChildHealth för att diskutera pågående forskning om tillgång till sjukvård inom barnkirurgi. – Vi förbereder publicering av kvalitativa forskningsresultat baserat på intervjuer med föräldrar till barn som lämnat sjukhuset efter en operation, säger Runar Vilhjalmsson, professor vid University of Iceland, som ingår i arbetsgruppen. eChi

https://www.barnfamiljhalsa.lu.se/nyhet/220429 - 2025-10-19

Vetenskaplig workshop om e-hälsa

Den 20-21 oktober samlades forskare från forskningsprogrammet eChildHealth för en vetenskaplig workshop i Båstad. Inom forskningsprogrammet eChildHealth bedrivs forskning med målet att utveckla barncentrerad vård med stöd av e-hälsa. Forskarna undersöker bland annat hur en e-hälsoapp i en surfplatta kan underlätta kommunikationen mellan vårdpersonal och familj när barn med långvariga sjukdomar läm

https://www.barnfamiljhalsa.lu.se/nyhet/221031 - 2025-10-19

God tillgång till e-hälsostödd hälso- och sjukvård

Föräldrar upplever en god tillgång till e-hälsostödd hälso- och sjukvård visar en studie från forskningsprogrammet eChildHealth. Under de senaste åren har en rad olika e-hälsolösningar införts för att öka effektiviteten och ge patienterna inflytande, vilket leder till ett mer tillgängligt och rättvist hälso- och sjukvårdssystem. Inom barnsjukvården har e-hälsa förespråkats för att minska antalet b

https://www.barnfamiljhalsa.lu.se/artikel/god-tillgang-till-e-halsostodd-halso-och-sjukvard - 2025-10-19