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Data Management Planning: How Requirements and Solutions are Beginning to Converge Show all authors

Published 27 May 2020 Effective stewardship of data is a critical precursor to making data FAIR. The goal of this paper is to bring an overview of current state of the art of data management and data stewardship planning solutions (DMP). We begin by arguing why data management is an important vehicle supporting adoption and implementation of the FAIR principles, we describe the background, context

https://www.lupop.lu.se/article/data-management-planning-how-requirements-and-solutions-are-beginning-converge-show-all-authors - 2025-03-05

Call for proposals

Published 8 February 2018 PhD-courses of relevance for population research The strategic research area EpiHealth - Epidemiology for Health - together with LUPOP - Lund University Population Research Platform - now opens a call for proposals for new PhD - courses of relevance for population research. We will fund 3 - 5 courses during 2018 related to e.g. epidemiological data analysis, medical stati

https://www.lupop.lu.se/article/call-proposals - 2025-03-05

A Health-Conscious Food Pattern Is Associated with Prediabetes and Gut Microbiota in the Malmö Offspring Study

Published 28 May 2020 Food patterns were extracted using principal component analysis in 1726 individuals (aged 18–71 y, 55% women, mean BMI = 25.5 kg/m2) without diabetes from the population-based Malmö Offspring Study. The gut (fecal) microbiota was analyzed by sequencing the 16S ribosomal RNA gene (V1–V3 region). Prediabetes classification was based on fasting glucose ≥6.0 mmol/L and/or glycate

https://www.lupop.lu.se/article/health-conscious-food-pattern-associated-prediabetes-and-gut-microbiota-malmo-offspring-study - 2025-03-05

Availability, access, analysis and dissemination of small-area data

Published 28 May 2020 In this era of ‘big data’, there is growing recognition of the value of environmental, health, social and demographic data for research. Open government data initiatives are growing in number and in terms of content. Remote sensing data are finding widespread use in environmental research, including in low- and middle-income settings. While our ability to study environment an

https://www.lupop.lu.se/article/availability-access-analysis-and-dissemination-small-area-data - 2025-03-05

The prognostic impact of FLT3-ITD and NPM1 mutation in adult AML is age-dependent in the population-based setting

Published 29 May 2020 In acute myeloid leukemia (AML) FLT3 internal tandem duplication (ITD) and nucleophosmin 1 (NPM1) mutations provide prognostic information with clinical relevance through choice of treatment, but the effect of age and sex on these molecular markers has not been evaluated. New publication in Blood Advances

https://www.lupop.lu.se/article/prognostic-impact-flt3-itd-and-npm1-mutation-adult-aml-age-dependent-population-based-setting - 2025-03-05

The Role of the Palliative Care Registered Nurse in the Nursing Facility Setting.

Published 30 May 2020 There is a growing recognition of significant, unmet palliative care needs in nursing facilities, yet limitations in the workforce limit access to palliative care services. Attention to palliation is particularly important when there are efforts to reduce hospitalizations to help ensure there are no unintended harms associated with treating residents in place. New publication

https://www.lupop.lu.se/article/role-palliative-care-registered-nurse-nursing-facility-setting - 2025-03-05

The age-related effect on cognitive performance in cognitively healthy elderly is mainly caused by underlying AD pathology or cerebrovascular lesions: implications for cutoffs regarding cognitive impairment

Published 30 May 2020 As research in treatments for neurocognitive diseases progresses, there is an increasing need to identify cognitive decline in the earliest stages of disease for initiation of treatment in addition to determining the efficacy of treatment. For early identification, accurate cognitive tests cutoff values for cognitive impairment are essential. New publication in Alzeheimer´s R

https://www.lupop.lu.se/article/age-related-effect-cognitive-performance-cognitively-healthy-elderly-mainly-caused-underlying-ad - 2025-03-05

Validation of the 34‐week gestation as definition of late onset preeclampsia: Testing different cutoffs from 30 to 37 weeks on a population‐based cohort of 1700 preeclamptics

Published 31 May 2020 Early onset preeclampsia (EOP) and late onset preeclampsia (LOP) have been differentiated with a cut‐point of ≤34 weeks. This classical definition has never been examined with respect to maternal characteristics by different gestational age cut‐points. We examined maternal characteristics in a population‐based cohort of 1736 preeclamptic deliveries at different gestational ag

https://www.lupop.lu.se/article/validation-34-week-gestation-definition-late-onset-preeclampsia-testing-different-cutoffs-30-37 - 2025-03-05

Incidence, aetiology and related comorbidities of cirrhosis: a Swedish population-based cohort study

Published 31 May 2020 The incidence of cirrhosis for individuals in Sweden has previously been reported as stable/low among European countries. However, Swedish population-based studies are scarce and none of them included data from the most recent decade (2010–2019). We aimed to describe the incidence and aetiology of cirrhosis in the Halland region from 2011 to 2018, and to describe the severity

https://www.lupop.lu.se/article/incidence-aetiology-and-related-comorbidities-cirrhosis-swedish-population-based-cohort-study - 2025-03-05

Doubly robust inference procedure for relative survival ratio in population‐based cancer registry data

Published 1 June 2020 Cancer registry system has been playing important roles in research and policy making in cancer control. In general, information on cause of death is not available in cancer registry data. To make inference on survival of cancer patients in the absence of cause of death information, the relative survival ratio is widely used in the population‐based cancer research utilizing e

https://www.lupop.lu.se/article/doubly-robust-inference-procedure-relative-survival-ratio-population-based-cancer-registry-data - 2025-03-05

Low lung function and the risk of incident chronic kidney disease in the Malmö Preventive Project cohort

Published 1 June 2020 Baseline lung function was assessed in 20,700 men and 7325 women from 1974 to 1992. Mean age was 43.4 (±6.6) and 47.5 (±7.9) for men and women respectively. Sex-specific quartiles of FEV1 and FVC (L) were created (Q4: highest, reference) and the cohort was also divided by the FEV1/FVC ratio (≥ or < 0.70). Cox proportional hazards regression was used to determine the risk of i

https://www.lupop.lu.se/article/low-lung-function-and-risk-incident-chronic-kidney-disease-malmo-preventive-project-cohort - 2025-03-05

Birth outcomes in a Swedish population of women reporting a history of violence including domestic violence during pregnancy: a longitudinal cohort study

Published 2 June 2020 Victimisation of women is encountered in all countries across the world, it damages the mental and physical health of women. During pregnancy and the postpartum period, women are at a greater risk of experiencing violence from an intimate partner. The aim of this study was to explore childbirth outcomes in a Swedish population of women reporting a history of violence includin

https://www.lupop.lu.se/article/birth-outcomes-swedish-population-women-reporting-history-violence-including-domestic-violence - 2025-03-05

Registries and databases—A European perspective

Published 2 June 2020 Registries will enable cohort studies to be performed, which are usually considered to be the best quality of observational studies. The quality of data of registries can be increased if is it possible to merge results (‘crosstalk’) between registries. A prerequisite for that is an agreed uniform core set of data to be collected and uniform definitions on the items to be coll

https://www.lupop.lu.se/article/registries-and-databases-european-perspective - 2025-03-05

Advancing Global Health Through Environmental and Public Health Tracking

Published 3 June 2020 Global environmental change has degraded ecosystems. Challenges such as climate change, resource depletion (with its huge implications for human health and wellbeing), and persistent social inequalities in health have been identified as global public health issues with implications for both communicable and noncommunicable diseases. This contributes to pressure on healthcare

https://www.lupop.lu.se/article/advancing-global-health-through-environmental-and-public-health-tracking - 2025-03-05

Diabetes Registry of Pakistan

Published 3 June 2020 Diabetes registries can be used to monitor the prevalence and incidence of diabetes. Diabetes registries are used in many countries for population management of diabetes, outcomes management, and development of Clinician finding Support Structure, for example, National Diabetes Registry (NDR) in Sweden and Singapore diabetes registry. New publication in Pak J Med Sci.

https://www.lupop.lu.se/article/diabetes-registry-pakistan-0 - 2025-03-05

Bone Mineral Density in Relation to Chronic Kidney Disease After Heart Transplantation: A Retrospective Single-center Study at Skåne University Hospital in Lund 1988-2016.

Published 4 June 2020 Our aim was to investigate the bone mineral density (BMD) evolution and incidence of osteoporosis in relation to chronic kidney disease (CKD) up to 10 years after heart transplantation (HT). New publication in Europe PMC

https://www.lupop.lu.se/article/bone-mineral-density-relation-chronic-kidney-disease-after-heart-transplantation-retrospective - 2025-03-05

Family patterns of arterial stiffness across three generations in the Malmö Offspring Study

Published 4 June 2020 Central haemodynamics have in recent years emerged as a promising predictor of cardiovascular health and risk of cardiovascular disease (CVD). Central haemodynamics are affected early in the development of vascular aging and contributes to target organ damage. Carotid–femoral pulse wave velocity (c-f PWV), augmentation index (Aix) and central SBP (cSBP) are variables that ref

https://www.lupop.lu.se/article/family-patterns-arterial-stiffness-across-three-generations-malmo-offspring-study - 2025-03-05

Extending the Minimum Information About BIobank Data Sharing Terminology to Describe Samples, Sample Donors, and Events

Published 5 June 2020 The Minimum Information About BIobank data Sharing (MIABIS) was initiated in 2012. MIABIS aims to create a common biobank terminology to facilitate data sharing in biobanks and sample collections. The MIABIS Core terminology consists of three components describing biobanks, sample collections, and studies, in which information on samples and sample donors is provided at aggre

https://www.lupop.lu.se/article/extending-minimum-information-about-biobank-data-sharing-terminology-describe-samples-sample-donors - 2025-03-05