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The Norwegian Patient Registry and the Norwegian Registry for Primary Health Care: Research potential of two nationwide health-care registries

Published 27 August 2019 In Norway, the Directorate of Health is responsible for two nationwide registries – the Norwegian Patient Registry (NPR) and the Norwegian Registry for Primary Health Care (NRPHC) – which together cover all governmental-funded health care. The NPR (specialist health care) was established in 2008, while the NRPHC (primary health care) was established in 2017. New publicatio

https://www.lupop.lu.se/article/norwegian-patient-registry-and-norwegian-registry-primary-health-care-research-potential-two - 2025-01-10

Food patterns in relation to weight change and incidence of type 2 diabetes, coronary events and stroke in the Malmö Diet and Cancer cohort

Published 28 August 2019 The study included 20,487 individuals (61% women) from the Malmö Diet and Cancer cohort, 45–74 years, without diabetes and CVD at baseline (1991–1996) and who did not report dietary changes. Diet was measured with a modified diet history method. During 15 years follow-up, 2206 T2D, 1571 CE and 1332 stroke cases were identified. Data on weight change after 16.7 years were a

https://www.lupop.lu.se/article/food-patterns-relation-weight-change-and-incidence-type-2-diabetes-coronary-events-and-stroke-malmo - 2025-01-10

Editor's Choice - Recommendations for Registry Data Collection for Revascularisations of Acute Limb Ischaemia: A Delphi Consensus from the International Consortium of Vascular Registries.

Published 29 August 2019 A modified Delphi study allowed 37 international vascular registry experts to achieve a consensus recommendation for a minimum core and an optimum data set for registries covering patients who undergo ALI revascularisation. Continued global harmonisation of registry infrastructure and definition of items allows international comparisons and global quality improvement. Furt

https://www.lupop.lu.se/article/editors-choice-recommendations-registry-data-collection-revascularisations-acute-limb-ischaemia - 2025-01-10

Neighborhood linking social capital as a predictor of lung cancer: A Swedish national cohort study

Published 30 August 2019 The aim of this nationwide follow-up study was to examine whether neighborhood linking social capital is associated with lung cancer, including incident and mortality cases, after adjustment for individual- and familial-level factors. New publication in Cancer EpidemiologyRead more here

https://www.lupop.lu.se/article/neighborhood-linking-social-capital-predictor-lung-cancer-swedish-national-cohort-study - 2025-01-10

Combining population-based administrative health records and electronic medical records for disease surveillance

Published 2 September 2019 Administrative health records (AHRs) and electronic medical records (EMRs) are two key sources of population-based data for disease surveillance, but misclassification errors in the data can bias disease estimates. Methods that combine information from error-prone data sources can build on the strengths of AHRs and EMRs. We compared bias and error for four data-combining

https://www.lupop.lu.se/article/combining-population-based-administrative-health-records-and-electronic-medical-records-disease - 2025-01-10

Accounting for missing data in statistical analyses: multiple imputation is not always the answe

Published 4 September 2019 Missing data are unavoidable in epidemiological research, potentially leading to bias and loss of precision. Multiple imputation (MI) is widely advocated as an improvement over complete case analysis (CCA). However, contrary to widespread belief, CCA is preferable to MI in some situations. New publication in International Journal of EpidemiologyRead more here

https://www.lupop.lu.se/article/accounting-missing-data-statistical-analyses-multiple-imputation-not-always-answe - 2025-01-10

Establishing a regional paediatric registry improved the overview and detection of side effects in children on anticoagulants.

Published 5 September 2019 The use of oral anticoagulants is rarer in children than adults, but studies indicate that their paediatric use is increasing. Warfarin has been used in children, at the discretion of the treating physician, but both the number of children and the data on its use are limited New publication in Acta Paediatr.Read more here

https://www.lupop.lu.se/article/establishing-regional-paediatric-registry-improved-overview-and-detection-side-effects-children - 2025-01-10

Cancer therapy and risk of congenital malformations in children fathered by men treated for testicular germ-cell cancer: A nationwide register study

Published 6 September 2019 Because of the potential mutagenic effects of chemo- and radiotherapy, there is concern regarding increased risk of congenital malformations (CMs) among children of fathers with cancer. Previous register studies indicate increased CM risk among children conceived after paternal cancer but lack data on oncological treatment. Increased CM risk was recently reported in chil

https://www.lupop.lu.se/article/cancer-therapy-and-risk-congenital-malformations-children-fathered-men-treated-testicular-germ-cell - 2025-01-10

FAIR data stewardship: Supporting FAIR data interoperability

Published 3 September 2019 A fully fledged 5-day training event which will provide the much needed foundational skills for competent data stewards and data managers in the Nordic countries with knowledge of the FAIR principles and their application. The course will be held by two trainers from GO-FAIR and provides a broad but fairly technical introduction to data stewardship. Read more here.

https://www.lupop.lu.se/article/fair-data-stewardship-supporting-fair-data-interoperability - 2025-01-10

Etikprövningsmyndigheten inför nytt ärendehanteringssystem

Published 4 September 2019 Etikprövningsmyndigheten lämnar nu det ärendehanteringssystem som utvecklats i Prisma för etikprövningar. Anledningen är att det inte ger det stöd som var avsikten. Nu upphandlas istället ett nytt system och ambitionen är att det nya ska finnas på plats under 2020. Tills dess kommer myndigheten använda en övergångslösning för att hantera etikprövningar. Prisma stängs för

https://www.lupop.lu.se/article/etikprovningsmyndigheten-infor-nytt-arendehanteringssystem - 2025-01-10

Evaluating selection bias in a population-based cohort study with low baseline participation: the LIFE-Adult-Study

Published 9 September 2019 Participation in epidemiologic studies is steadily declining, which may result in selection bias. It is therefore an ongoing challenge to clarify the determinants of participation to judge possible selection effects and to derive measures to minimise that bias. We evaluated the potential for selection bias in a recent population-based cohort study with low baseline parti

https://www.lupop.lu.se/article/evaluating-selection-bias-population-based-cohort-study-low-baseline-participation-life-adult-study - 2025-01-10

Association between cerebral microbleeds and hypertension in the Swedish general population “Good Aging in Skåne” study

Published 10 September 2019 Cerebral microbleeds (CMB) on MRI are frequent in healthy aging individuals but precede ischemic and hemorrhagic stroke and dementia. Different etiologies have been suggested for nonlobar CMB, which have a stronger connection to hypertension (HT) than do lobar CMB. This study aimed to investigate the prevalence of CMB and the association between nonlobar/lobar CMB and d

https://www.lupop.lu.se/article/association-between-cerebral-microbleeds-and-hypertension-swedish-general-population-good-aging - 2025-01-10

The validity of propensity score analysis using complete cases with partially observed covariates

Published 11 September 2019 In their simulation study, Choi et al. compared different methods for handling missing covariate data in the context of propensity score analysis. This study addressed an important question on how propensity score matching and weighting perform coupled with different methods handing missing data when a treatment effect is homogenous or heterogeneous. New publication in

https://www.lupop.lu.se/article/validity-propensity-score-analysis-using-complete-cases-partially-observed-covariates - 2025-01-10

The history in epidemiology

Published 12 September 2019 In thinking of the history of epidemiology, the map usually comes to mind before the calendar or the clock. During the nineteenth century, the study of the pattern and distribution of disease commonly suggested a terrain, a spatial ordering, that might align with environmental hazards, or later, with bacteriological threats. New publication in Internationa Journal of Ep

https://www.lupop.lu.se/article/history-epidemiology - 2025-01-10

The Long-Lasting Influenza: The Impact of Fetal Stress During the 1918 Influenza Pandemic on Socioeconomic Attainment and Health in Sweden, 1968–2012

Published 13 September 2019 The 1918 influenza pandemic had not only a massive instant death toll but also lasting effects on its survivors. Several studies have shown that children born in 1919, and thus exposed to the H1N1 virus in utero, experienced worse health and socioeconomic outcomes in older ages than surrounding birth cohorts. New publication in Demography.Read more here.

https://www.lupop.lu.se/article/long-lasting-influenza-impact-fetal-stress-during-1918-influenza-pandemic-socioeconomic-attainment - 2025-01-10

Utredare forskningsdata vid Stockholms universitetsbibliotek

Published 10 September 2019 Du kommer tillhöra forskningsdatagruppen och ha ditt huvudsakliga arbetsområde inom verksamhetsområdet publicerings- och forskarstöd i biblioteket. Du kommer samverka med kollegor i biblioteket som arbetar med liknande frågor. Eftersom arbetsområdet är universitetsövergripande kommer du också att samarbeta med andra forskningsstödjande avdelningar inom förvaltningen och

https://www.lupop.lu.se/article/utredare-forskningsdata-vid-stockholms-universitetsbibliotek - 2025-01-10